NET Clinical Trial Finder Tool
Reading between the stripes - launch of a new tool makes clinical trials accessible for every NETs patient
Summary
The first neuroendocrine tumor clinical trial finder for patients and physicians has been launched by Ancora.ai and NorCal CarciNET. The free online tool offers personalized, unbiased trial results and can be accessed at https://www.ancora.ai/neuroendocrine. It is also available at NorCal CarciNET', INCA Alliance and NETRF's websites.
1. Introduction:
Clinical trials are often the best (sometimes only) treatment option for neuroendocrine tumors (NETs) due to rapidly evolving research in the space and a dearth of good standard of care treatment options. However, identifying the right clinical trial is a tedious task even for specialist physicians, and a nearly impossible one for patients.
2. About the tool:
Tell us your story
NorCal CarciNET Community has participated in the Oakland Marathon (Oakland Running Festival) for over a decade. In that time we have had over 250 runners, walkers, and everything in between raise awareness and over $100,000 for our NET Community.
We continue to be a leading non-profit at this event. Tell us your story, so we can share it with the festival organizer. Why do you participate or donate to this event? Who do you do it for or in honor of?
You don't need to have an account - just use your name and email.
NorCal CarciNET Community Objects to Humana’s Decision to Deny Coverage for PET/CT & SPECT/CT
NorCal CarciNET Community joins others in the medical community objecting to Humana's decision to deny coverage for most PET and SPECT procedures starting on February 4, 2021. The NET community relies on PET imaging to better understand our disease and to establish if we are candidates for PRRT therapy.
We hope others will join us and let Humana know that this policy is endangering the health of those with NETs and diseases.
To download our letter to Humana, please click here.
Eating in the time of the COVID Pandemic - Q&A with Rebecca Katz
We are beyond grateful that Rebbeca Katz, author of the "Cancer Fighting Kitchen" and Jen Yasis, Founder of the Healing Kitchens, took time to answer questions that our neuroendocrine tumor community had on eating while we are all staying home and limiting our exposure during this pandemic.
This information does not constitute professional medical advice. For questions regarding your own health, always consult a physician.
Recipes referenced in this video:
My Everything Drizzle Magic Mineral Broth Cozy Roasted Vegetable Soup Roasted Fingerling Potatoes with Pesto
Search the Recipe Box at RebeccaKatz.com more herby drizzles, dollops, other blended soups, and recipes.
Remember to omit minor ingredients that are not recommended for a NET or CS diet or that you know are not well tolerated.
Vinegar was mentioned in the video to clean fruits and vegetables - this is for other bacteria (NPR: What does it take to clean fresh food)
COVID-19 and NETS
We are grateful to Dr. Pamela Kunz, MD (Oncology) and Dr. Janice (Wes) Brown, MD (Infectious Disease)
of Stanford University for their assistance in answering these questions.
As information is changing rapidly - Please consult with your medical team and the resources listed below for any updates or changes.
We welcome you to join our mailing list to be updated.
If you experience symptoms of fever, cough, or breathing problems, please call your medical provider immediately to be evaluated for COVID-19.
Interview with Dr. Pamela Kunz on 2020 Bay Area Conference Cancellation and COVID-19
- 2020 Bay Area Neuroendocrine Patient Conference - Hosted by Stanford Medicine
- MEDICARE / CMS and Reimbursement for Advanced Radiopharmaceuticals
- Passing of Aretha Franklin
- Lutathera Approved by FDA for Treatment of GEP NETS
- 2018 Bay Area Neuroendocrine Patient Conference - Hosted by UCSF
- 2019 Bay Area Neuroendocrine Patient Conference - Hosted by UCSF