Checklist for the Newly Diagnosed
Checklist for the Newly Diagnosed (with thanks to carcinoid.org)
1) You will need a specialist in NETs to provide a second opinion and to assist your local oncologist in your treatment because, unless you are an exception, the local doctors will not know about current treatments or advances in our disease. The main quality you need from your local oncologist is a willingness to follow your lead.
Living with a Rare Cancer
Living With a Rare Cancer—My Dr. Seuss World.
From cancer survivor to patient advocate, oh, the places I have gone.
On May 25th, 2015, the ASCO Post published Josh Mailman's article on living with a rare cancer.
"No one ever expects to hear the words 'you have cancer,' but over the course of the day, over 5,000 people in the United States are given that news.1 I first heard those words in the summer of 2007 and have been living with cancer ever since. At the time of my diagnosis, I knew this would forever change my and my family's lives, but it has done so in ways I could hardly have imagined. Little did I know that my life would be transformed into two of Dr. Seuss' books—Did I Ever Tell You How Lucky You Are? and Oh, The Places You'll Go. Let me explain."
1 To read the complete article, visit the ASCO Post by clicking here.