Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers. By providing opportunities for our members to connect with others who have these rare illnesses we will enable them not only to get their questions answered but also to give and receive emotional support. In addition, we aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.

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NorCal CarciNET Community is now a 501(c)(3) (Tax-Id 45-2968919)

Contribution made to our group are now tax deductible.

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Reading between the stripes - launch of a new tool makes clinical trials accessible for every NETs patient

Summary

The first neuroendocrine tumor clinical trial finder for patients and physicians has been launched by Ancora.ai and NorCal CarciNET. The free online tool offers personalized, unbiased trial results and can be accessed at https://www.ancora.ai/neuroendocrine. It is also available at NorCal CarciNET',  INCA Alliance and NETRF's websites. 

1. Introduction:

Clinical trials are often the best (sometimes only) treatment option for neuroendocrine tumors (NETs) due to rapidly evolving research in the space and a dearth of good standard of care treatment options. However, identifying the right clinical trial is a tedious task even for specialist physicians, and a nearly impossible one for patients.

2. About the tool:

On the first Wednesday of every odd-numbered month, UCSF and NorCal CarciNET Community hold a joint community meeting. You can see and register for any NorCal CarciNET Community meeting/event by visiting our event calendar. We try to record the meetings when we can based on technology availability and subject matter. 

View our previous meetings below.

 

 

 

2019 Neuroendocrine Tumor Patient ConferenceUCSF Diller navy
Hosted by:UCSF Helen Diller Family Comprehensive Cancer Center
In cooperation with NorCal CarciNET Community, and Stanford University Medical Center

Sunday, February 10, 2019 - 8:30 am to 5:00 pm
Mission Bay Conference Center - 1675 Owens Street, San Francisco, CA 

The day will feature nationally-renowned UCSF and Stanford NET experts, along with other internationally-known physician specialists who will offer sessions on a wide variety of topics pertaining to Neuroendocrine Tumors (NETS) including surgery, liver directed therapy, imaging, PRRT, current clinical trials and strategies for living well after diagnosis. A pre-conference “primer” is offered for those newly diagnosed or in need a refresher on the basics of NETs. We will also have breakout sessions by disease types and breakouts specifically for caregivers. 

New in 2019 - Extend lunch time table talks. We are extending lunch networking time to 90 minutes and expanding the number of networking table topics.

Open to patients, caregivers and those interested in NETs.

Thanks to generous support from NorCal CarciNET Community, and our Industry Partners there is no registration fee. Conference registration includes lunch and parking.

Click on Read more info for speakers, agenda, and supporters.

Videos from the 2018 Bay Area NET Patient Conference - View them all here.

Keynote: Dr. Steve Pantilat