NorCal CarciNET Community
Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers. By providing opportunities for our members to connect with others who have these rare illnesses we will enable them not only to get their questions answered but also to give and receive emotional support. In addition, we aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.
Please This email address is being protected from spambots. You need JavaScript enabled to view it. with suggestions, photos, stories, etc.
NorCal CarciNET Community is now a 501(c)(3) (Tax-Id 45-2968919)
Contribution made to our group are now tax deductible.
Patient Program at 3rd Theranostic World Congress
Thanks to grants from Caring for Carcinoid Foundation and Carcinoid Cancer Foundation, the Saturday sessions (March 14) at the 3rd Theranostics Congress will be free of charge for patients.
Saturday sessions start at 8am so those not living in the area may wish to stay overnight on March 13. The conference Marriot Baltimore Waterfront no longer has conference rate available, but there are several hotels nearby that have less expensive rates.
To learn more about the conference visit the conference website.
To register for the patient program, please visit the patient registration website.
2015 Regional Conference
The Caring for Carcinoid Foundation and Stanford University Cancer Center present
The 4th Annual Neuroendocrine Tumor Patient Educational Conference
Sponsored by Stanford University and the Caring for Carcinoid Foundation in collaboration with
the University of California San Francisco and the Northern California CarciNET Community
We are pleased to bring together our extensive communities of patients, caregivers, medical professionals, and supporters for our 2015 educational conference. The entire Stanford leadership team who will be conducting the Caring for Carcinoid Foundation’s 2015 immunotherapy clinical trial will be in attendance! Learn about the latest developments in clinical care for patients with neuroendocrine cancer from experts at Stanford and UCSF. Attendees will be able to network with distinguished medical professionals and fellow patients. Sessions will cover advances in diagnosis and treatment, the latest in research, and coping with the stresses of living with cancer.
To learn more about the Caring for Carcinoid Foundation, visit www.caringforcarcinoid.org or call 617-948-2514.
Please contact This email address is being protected from spambots. You need JavaScript enabled to view it. with questions. Click here to view our flier. The agenda will be available shortly.
Date: Sunday, March 1, 2015
Time: 10:00 a.m. - 6:15 p.m. Registration begins at 9:00 a.m.
Location: Stanford University Arrillaga Alumni Center. Click here for directions.
Dec 2014 Meeting
At our December 6th, 2014 meeting, Ron Hollander, Executive Director of Caring for Carcinoid Foundation (CFCF) shared with us exciting information about the Immunotherapy research they are funding for NETs at Stanford and University of Pennsylvania.
Ron shared with us the following video on the work that has been done on immunotherapy with other diseases by Dr. June a member of the UPenn team.
Fire With Fire | Ross Kauffman from Focus Forward Films on Vimeo.
Press play to listen to Ron's presentation to our group.
To learn more about immunotherapy and NETs please click here.
In addition we also watched a presentation on Stress and Cancer that was preseted at the Society for Integrative Oncology's 2014 Conference by Dr. Sonia Lupien of the Centere For Studies on Human Stress.
End of Year (2014) Review
NorCal CarciNet Community is now approaching the end of its seventh year as an independent Carcinoid Neuroendocrine Community.
It has been another exciting year for us. In January 2014, NorCal CarciNet held its third annual NETs conference at UC Berkeley, which was attended by more than 150 community members.
JNCI Monograph on Integrative Oncology
The Society for Integrative Oncology has published a first-of-its kind breast cancer clinical practice guidelines in the Journal of the National Cancer Institute Monographs coinciding with the 11th International Conference of the Society for Integrative Oncology in Houston, Texas at the end of October. NorCal CarciNet Community President, Josh Mailman contributed a perspective on Integrative Oncology to the Monograph entitled "A Patients' Perspective on Integrative Oncology: Getting Past the "War," Living With and Beyond Cancer.
2014 SNMMI Patient Education on Nuclear Medicine and NETs
For the second year in a row, NorCal CarciNET Community and the Society of Nuclear Medicine and Molecular Imaging (SNMMI) held a patient education day during the SNMMI's Annual Meeting. The program took place on June 8th and began with three (3) general lectures about the definition of nuclear medicine and molecular imaging, safety of nuclear medicine, the value of patient and physician partnerships in care management. The afternoon concluded with breakout sessions focused on hot topics in colon cancer, prostate cancer, thyroid diseases, and neuroendocrine tumors. The total number of attendees was 120 with over 50 attending the NET breakout. To see the complete program and recordings of the breakout sessions, visit www.snmmi.org. The NET sessions are available below.
Getting the treatment you need covered by Insurance.
This article was provided by one of our founding board members Julie Portelli. To contact Julie This email address is being protected from spambots. You need JavaScript enabled to view it..
If you have health insurance, you have entered into a legal contract with your insurer. You make your payments and they should do everything written in the "contract". While it works well most of the time there are times you will receive a denial for a service or treatment. Don't give up – now you have to prove to your insurance company where in their contract it calls for the service or treatment you are requesting. First things first - you need your contract. Not everyone who has "XYZ" insurance has the same contract.