Our mission is to help those with neuroendocrine tumors and carcinoid to share challenges and experiences, learn about prognosis and treatments, find information, and improve communications between the medical community, patients and caregivers. By providing opportunities for our members to connect with others who have these rare illnesses we will enable them not only to get their questions answered but also to give and receive emotional support. In addition, we aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.

Please This email address is being protected from spambots. You need JavaScript enabled to view it. with suggestions, photos, stories, etc.

NorCal CarciNET Community is now a 501(c)(3) (Tax-Id 45-2968919)

Contribution made to our group are now tax deductible.

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MEDICARE OPEN ENROLLMENT 2021 BEGINS OCTOBER 15, 2020

Please note that Medicare 2021 open enrollment is October 15, 2020 - December 7, 2020.

NCOA

On November 13, NorCal CarciNET Community hosted a webinar to help NET Patients around the country better understand the process for selecting PART D Medicare Coverage. 

We were pleased to have Ann Kayrish from the National Council on Aging (NCOA) as our guest. Ann is NCOA Senior Program Manager for Medicare.


PowerPoint Slides are available by clicking here.
Educational support for our webinar was provided by AAA, Curium, Ipsen, and Lexicon (now TerSera)

We are posting questions that are being collected at slido.com/NETCOVID

We are grateful to Dr. Pamela Kunz, MD (Oncology) and Dr. Janice (Wes) Brown, MD (Infectious Disease)
of Stanford University for their assistance in answering these questions.

As information is changing rapidly - Please consult with your medical team and the resources listed below for any updates or changes.

We welcome you to join our mailing list to be kept up to date.

If you experience symptoms of fever, cough or breathing problems please call your medical provider immediately to be evaluated for COVID-19.

Click here for COVID-19 and NETS Frequently Asked Question Page

Interview with Dr. Pamela Kunz on 2020 Bay Area Conference Cancellation and COVID-19

 

July 2020, UCSF/NorCal CarciNET Meeting

On July 1, 2020, UCSF and NorCal CarciNET Community help our second virtual support group meeting,

Dr. Claire Mulvey gave a short presentation on the upcoming e-NET study. The study which will kick of this summer is a three-year study that will track Neuroendocrine patient-reported outcomes related to our care. NorCal CarciNET Community provided funding for this study.

Dr. Dianne Shumay also addressed our group on Stress and Cancer in the time of COVID-19. Dr. Shumay was joined by Nina Jhaveri a post-doc fellow from USC who is currently working with Dr. Shumay at UCSF

The presentation is available as a pdf here. The resource pdf is available to download here.

2019 Neuroendocrine Tumor Patient ConferenceUCSF Diller navy
Hosted by:UCSF Helen Diller Family Comprehensive Cancer Center
In cooperation with NorCal CarciNET Community, and Stanford University Medical Center

Sunday, February 10, 2019 - 8:30 am to 5:00 pm
Mission Bay Conference Center - 1675 Owens Street, San Francisco, CA 

The day will feature nationally-renowned UCSF and Stanford NET experts, along with other internationally-known physician specialists who will offer sessions on a wide variety of topics pertaining to Neuroendocrine Tumors (NETS) including surgery, liver directed therapy, imaging, PRRT, current clinical trials and strategies for living well after diagnosis. A pre-conference “primer” is offered for those newly diagnosed or in need a refresher on the basics of NETs. We will also have breakout sessions by disease types and breakouts specifically for caregivers. 

New in 2019 - Extend lunch time table talks. We are extending lunch networking time to 90 minutes and expanding the number of networking table topics.

Open to patients, caregivers and those interested in NETs.

Thanks to generous support from NorCal CarciNET Community, and our Industry Partners there is no registration fee. Conference registration includes lunch and parking.

Click on Read more info for speakers, agenda, and supporters.

Videos from the 2018 Bay Area NET Patient Conference - View them all here.

Keynote: Dr. Steve Pantilat