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Newly Diagnosed

We encourage you to join us at our monthly meetings where you will have the opportunity to discuss your questions and concerns with those who have been living with a NET diagnosis with those who have been living with NETs for years (in some cases over 25 years.)

Our Mission

Providing opportunities for our members to connect with others who have these rare illnesses will enable them not only to get their questions answered, but also to give and receive emotional support. We aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.

Conference

2026 Bay Area Neuroendocrine Carcinoma (NEC) Patient Conference - Hosted by UCSF

Sunday, October 4, 2026 - 9:00 am to 3:30 pm
Mission Bay Conference Center - 1675 Owens Street, San Francisco, CA

The day will feature nationally renowned UCSF experts who will offer sessions on various topics related to poorly differentiated neuroendocrine carcinomas (NEC). We will also have breakout sessions by disease type and breakouts for caregivers.

This event is in-person or virtual. For in-person attendees, we will cover parking, lunch, and snacks.

Register Here

Upcoming Events

1 Sep

Bi-Weekly Support meeting

Sep 1, 11:00 am - 12:00 pm

Twice-weekly NorCal Carcinet Community Networking meeting

2 Sep

UCSF/NorCal CarciNET Virtual Education Meetin

Sep 2, 12:00 pm - 1:00 pm

4 Sep

Bi-Weekly Support meeting

Sep 4, 11:00 am - 12:00 pm

Twice-weekly NorCal Carcinet Community Networking meeting

8 Sep

Bi-Weekly Support meeting

Sep 8, 11:00 am - 12:00 pm

Twice-weekly NorCal Carcinet Community Networking meeting

Make Connections

Our mission is to help those with neuroendocrine tumors and carcinoids to share challenges and experiences. Join us at our meetings and events.

March 22, 2026

Oakland Running Festival

Show your stripes with NorCal CarciNet Community as we run in the Oakland Running Festival. NorCal CarciNet Community is participating in the 2026 Oakland Running Festival. Click here to register. If you need more information or want to donate to one of our runners' contribution pages, click here.

Videos

A collections of videos from out UCSF / NorCal CarciNET Community Meetings.

Guidelines

When you are diagnosed, it may seem that there are endless decisions to make and countless questions. A good place to start to better understand you or the person you are helping is by reading the guidelines for diagnosis and treatment for NETs and Carcinoids. These publications are written by NET specialists and cover the diagnostic and treatment approach for those with NETs in the country or region they are written for. Please click here to look at current guidelines,