Resource

  • 2018 Neuroendocrine Tumor Patient ConferenceUCSF Diller navy
    Hosted by:UCSF Helen Diller Family Comprehensive Cancer Center
    In cooperation with NorCal CarciNET Community, NET Research Foundation, Stanford University Medical Center

    Sunday, January 21, 2018 - 8:30 am to 5:00 pm
    Mission Bay Conference Center - 1675 Owens Street, San Francisco, CA 

    The day will feature nationally-renowned UCSF and Stanford NET experts, along with other internationally-known physician specialists who will offer sessions on immunotherapy, tumor bio-markers, PRRT, current clinical trials and strategies for living well after diagnosis. A pre-conference “primer” is offered for those newly diagnosed or in need a refresher on the basics of NETs. We will also have breakout sessions for disease types as well as some specifically for caregivers.

  • 2019 Neuroendocrine Tumor Patient ConferenceUCSF Diller navy
    Hosted by:UCSF Helen Diller Family Comprehensive Cancer Center
    In cooperation with NorCal CarciNET Community, and Stanford University Medical Center

    Sunday, February 10, 2019 - 8:30 am to 5:00 pm
    Mission Bay Conference Center - 1675 Owens Street, San Francisco, CA 

    The day will feature nationally-renowned UCSF and Stanford NET experts, along with other internationally-known physician specialists who will offer sessions on a wide variety of topics pertaining to Neuroendocrine Tumors (NETS) including surgery, liver directed therapy, imaging, PRRT, current clinical trials and strategies for living well after diagnosis. A pre-conference “primer” is offered for those newly diagnosed or in need a refresher on the basics of NETs. We will also have breakout sessions by disease types and breakouts specifically for caregivers. 

    New in 2019 - Extend lunch time table talks. We are extending lunch networking time to 90 minutes and expanding the number of networking table topics.

    Open to patients, caregivers and those interested in NETs.

    Thanks to generous support from NorCal CarciNET Community, and our Industry Partners there is no registration fee. Conference registration includes lunch and parking.Registration ended on Febuary 1, 2019.  

    We will have limited room for those who are coming day of the event.

    Register

    Click here for Agenda

  • On July 18, 2018, Dr. Donald Abrams spoke to NorCal CarciNET Community on "Understanding Complementary Approaches to Cancer Care"

  • Dr. Suki Padda MD., from Stanford University, spoke to  NorCal CariNET on Lung NETs on April 1, 2017. Dr. Paddi received one of NorCal CarciNET 2016 educational travel grants to the NANETS symposium in Jackson Hole.

  • In May, 2017,  Dr. Tom Hope from UCSF spoke to NorCal Carcinet with an update on PRRT.

     

  • MEDICARE OPEN ENROLLMENT 2018 BEGINS OCTOBER 15, 2017

    Please note that Medicare 2018 open enrollment is October 15, 2017 - December 7, 2017.

    NCOA

    On November 16, NorCal CarciNET Community hosted a webinar to help NET Patients around the country better understand the process for selecting PART D Medicare Coverage. 

    We were pleased to have Ann Kayrish from the National Council on Aging (NCOA) as our guest. Ann recently joined NCOA as a Senior Program Manager, for Medicare. Click here for the slide deck used in the video

    Educational support for our webinar was provided by Lexicon


    med2018

    By now you may have received your copy of “Medicare &You 2018” from the Centers of Medicare and Medicaid Services. This is a manual containing information regarding Medicare coverage choices, things to consider when choosing Medicare, and important enrollment information. At the very end of the manual, you will find information specific to Medicare plans in your geography.

    “Medicare&You 2018” Handbook

    (This is a general version and will not have plans specific to your area)

    Another resource is the online Medicare tool, www.medicare.gov
    Below are general descriptions only of the search tool.

    If you are looking for more information or to compare Medicare Plans, please go to
    www.medicare.gov/find-a-plan. You are able to do a General Search or a Personalized Search.

    If you perform a Personalized Search, you will need to have your Medicare number, your birthdate, and input the zip code that Medicare has on record for you. If you also are comparing Part D plans, have a list of your drugs, exact name, dose, and quantity.

    Personal

    At the bottom of either the General Search or the Personalized Search, click Find Plans. Answer the following questions as appropriate and click on Continue to Plan Results. From here, you will need to enter your drugs exactly. After your drug list is complete, you will need to select a pharmacy. Once you choose a pharmacy, you will click on Continue to Plan Results.

    From here, you can refine your plan results such as click on Prescription Drug Plans (with Original Medicare) or click on Medicare Plans with drug coverage. Now click on Continue to Plan Results. You will be able to see a list of available options and be able to sort results. If you are doing a Personalized Search, your plan will appear above the results.

    Thanks to Lexicon for helping to pull together this information as excerpted from Medicare .gov and Medicare & You 2018

  • In June 2017, the Society of Nuclear Medicine and Molecular Imaging held its annual Patient Education Day at their Annual meeting in Denver.

    In the first video - Dr. Phelps discusses the concepts behind molecular imaging, while in the second video Dr. Fahey discuss the safety and risks with nuclear imaging and therapy.

    Dr. Michael Phelps 

    Dr. Fred Fahey 

  •  Open Enrollement - Understanding your ACA Options. November 30, 2017 1-2p Pacific Time

    This webinar is hosted by NorCal CarciNET Community to help NET Patients around the country better understand open enrollment for the ACA. 

    CLRCWe are pleased to have Stephanie Fajuri from the Cancer Legal Resource Center (CLRC) joining us on the webinar. Stephaine is the Program Director of the Disability Rights Legal Center’s Cancer Legal Resource Center (CLRC) in Los Angeles, California. As CLRC Supervising Attorney, Ms. Fajuri provides legal services to people with cancer related legal issues, and has presented nearly 100 educational trainings on behalf of the CLRC, primarily focusing on topics such as health care reform, employment rights, access to health care and government benefits, and advance planning. Furthermore, she has overseen the counseling of thousands of cancer patients, caregivers, and health care professionals on the CLRC’s national telephone assistance line. 

     You can download the slides by clicking here.

     


     

  • In June 2017, Dr. Emily Bergsland spoke to patients at the Society of Nuclear Medicine and Molecular Imaging's Annual Meeting on how to better understand clinical trials.

  • Videos from the 2018 Bay Area NET Patient Conference - View them all here.

    Keynote: Dr. Steve Pantilat

  • In June 2017, the Society of Nuclear Medicine and Molecular Imaging held its annual Patient Education Day at their Annual meeting in Denver. The event featured three thoughtful presentation from NET clinicians about the state of NET Management and Nuclear Imaging. NorCal CarciNET Community President, Josh Mailman was also featured on SNMMI TV 

    Dr. Hope on Nuclear Medicine for NETs Patients