Newly Diagnosed

We encourage you to join us at our monthly meetings where you will have the opportunity to discuss your questions and concerns with those who have been living with a NET diagnosis with those who have been living with NETs for years (in some cases over 25 years.)

Our Mission

Providing opportunities for our members to connect with others who have these rare illnesses will enable them not only to get their questions answered, but also to give and receive emotional support. We aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.

Upcoming Events

30 Apr

Yoga for NET Cancer

Apr 30, 9:00 am - 10:00 am

7 May

Yoga for NET Cancer

May 7, 9:00 am - 10:00 am

14 May

Yoga for NET Cancer

May 14, 9:00 am - 10:00 am

Guidelines

When you are diagnosed, it may seem that there are endless decisions to make and countless questions. A good place to start to better understand you or the person you are helping is by reading the guidelines for diagnosis and treatment for NETs and Carcinoids. These publications are written by NET specialists and cover the diagnostic and treatment approach for those with NETs in the country or region they are written for. Please click here to look at current guidelines,

In Memory Henk Ryssemus

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Henk Ryssemus

It is with great sadness that the family of Henk Ryssemus, announce his passing following a long battle with a rare neuroendocrine cancer.

Henk was a founding member of our Community which provides information and hope for those with Carcinoid and Neuroendocrine Tumors (NET's)

All contributions honoring Henk will go to patient education and research. Henk was a valued member of our community and we will greatly miss him.

All donations made through this page will be in honor of Henk.

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NorCal CarciNET Community Objects to Humana’s Decision to Deny Coverage for PET/CT & SPECT/CT

In Memory Henk Ryssemus