Newly Diagnosed

We encourage you to join us at our monthly meetings where you will have the opportunity to discuss your questions and concerns with those who have been living with a NET diagnosis with those who have been living with NETs for years (in some cases over 25 years.)

Our Mission

Providing opportunities for our members to connect with others who have these rare illnesses will enable them not only to get their questions answered, but also to give and receive emotional support. We aspire to bring greater awareness to the medical community and the public so as to promote earlier detection and treatment of these often unrecognized illnesses.

Conference

2024 Bay Area Neuroendocrine Patient Conference - Hosted by UCSF

Sunday, September 29, 2024 - 9:00 am to 3:30 pm
Mission Bay Conference Center - 1675 Owens Street, San Francisco, CA

The day will feature nationally renowned UCSF and Stanford NET experts and other known physician specialists who will offer sessions on various topics about Neuroendocrine Tumors (NETS). We will also have breakout sessions by disease type and breakouts for caregivers.

Watch the videos here.

Upcoming Events

28 Jan

Virtual Support Group

Jan 28, 11:00 am - 12:00 pm

28 Jan

Healing Yoga for Cancer Side Effects Series

Jan 28, 12:30 pm - 2:00 pm

31 Jan

Virtual Support Group

Jan 31, 11:00 am - 12:00 pm

1 Feb

Meeting at Cancer Support Community Walnut Creek

Feb 1, 1:00 pm - 3:00 pm

Bi-monthly meeting at Cancer Support Community Walnut Creek - In person and hybrid.

Normally the first Saturday of even months - (Feb, Apr, June, Aug, Oct, Dec)

For location information: https://www.cancersupportcommunity.org/location/cancer-support-community-san-francisco-bay-area

Make Connections

Our mission is to help those with neuroendocrine tumors and carcinoids to share challenges and experiences. Join us at our meetings and events.

March 17, 2024

Oakland Running Festival

Show your stripes with NorCal CarciNet Community as we run in the Oakland Running Festival NorCal CarciNet Community is participating in the 2024 Oakland Running Festival. Click here to learn more and to register.

Videos

A collections of videos from out UCSF / NorCal CarciNET Community Meetings.

Guidelines

When you are diagnosed, it may seem that there are endless decisions to make and countless questions. A good place to start to better understand you or the person you are helping is by reading the guidelines for diagnosis and treatment for NETs and Carcinoids. These publications are written by NET specialists and cover the diagnostic and treatment approach for those with NETs in the country or region they are written for. Please click here to look at current guidelines,

Video

LiveStream 2016 Bay Area Conference

Agenda - Subject to Change You. To Switch to HD please click on the playback screen and change resolution (next to live button.

Download the Program Here

Click here if you would like to view full screen or are having any issues with playback.

Robertson Auditorium - 2nd Level UCSF Mission Bay Conference Center
8:30	NETS Overview - Pre Conference session for the newly diagnosed	Bergsland
8:55	Break
9:05	Opening Remarks Alan Ashworth, PhD, FRS President, UCSF Helen Diller Family Comprehensive Cancer Center
	Morning Session - Moderator: Bergsland
9:25	2015: Year in Review (including results of 3 phase III clinical trials in NETs and ongoing trials)	Kunz
10:00	Break
10:15	Molecular Imaging and Radiotherapeutics
	Advances in Imaging for NETS	Hope
	Peptide Receptor Radionuclide Therapy (PRRT): NETTER-1 results and 15 years of institutional experience	Baum
	PRRT: Next Steps and Ongoing Trials	Mittra
11:05	Liver Directed Therapy for NETS	Sze
11:30	Biomarkers in a Nutshell	Liu
11:45	Morning Q&A	All
12:15	Lunch
1:00	The Warner Advocacy Award	Salamakha Warner Advocacy Award Committee
	Afternoon Session - Moderator: Nakakura
1:15	Tumor Board: Integrating therapeutic options: Is there an optimal sequence for PanNET or Carcinoid	All
2:00	Assembling and Coordinating With Your Health Care Team (e.g. local providers, NET specialists and multidisciplinary teams)	Mailman Liu Kwong Cylke
2:30	Immunotherapy 101: Successes, limitations, and prospects for the future	Fong
3:15	Break
3:30	Funding NET Research: What does it take to bring a drug from the bench to the bedside?	Hollander Nakakura
3:50	Living With NETS: Optimizing coping skills for patients and their caregivers	Shumay
4:30	Wrap Up	Bergsland Mailman

Personal Medical Insurance

Open Enrollement - Understanding your ACA Options. November 30, 2017 1-2p Pacific Time

This webinar is hosted by NorCal CarciNET Community to help NET Patients around the country better understand open enrollment for the ACA.

We are pleased to have Stephanie Fajuri from the Cancer Legal Resource Center (CLRC) joining us on the webinar. Stephaine is the Program Director of the Disability Rights Legal Center’s Cancer Legal Resource Center (CLRC) in Los Angeles, California. As CLRC Supervising Attorney, Ms. Fajuri provides legal services to people with cancer related legal issues, and has presented nearly 100 educational trainings on behalf of the CLRC, primarily focusing on topics such as health care reform, employment rights, access to health care and government benefits, and advance planning. Furthermore, she has overseen the counseling of thousands of cancer patients, caregivers, and health care professionals on the CLRC’s national telephone assistance line.

You can download the slides by clicking here.
Understanding PRRT Videos

NorCal CarciNET Community has been involved in producing two PRTT webinars in 2020.

The first for LACNETS will give you a general understanding of how PRRT works as given in United States

This video features:
Lindy Gardner, BSN, RN, Lead Nurse, PRRT Program, UCLA Health
Thomas Hope, MD, Assistant Professor, Abdominal Imaging and Nuclear Medicine, UCSF
Josh Mailman, MBA, President, NorCal CarciNET Community
Boris Naraev, MD, PhD, Lead, Neuroendocrine Oncology Program, Banner Health

The second video is a more in-depth look at PRRT with 7 experts from around the world and was done in conjunction with the Society of Nuclear Medicine and Molecular Imaging.

This video features:

Jaydira Del Rivero, MD, National Cancer Institute Center for Cancer Research, Bethesda, MD
Ebrahim Delpassand, MD, Excel Diagnostics and Nuclear Oncology Center, Houston, TX
Rodney Hicks, Peter MacCallum Cancer Centre, Melbourne, Victoria, Australia
Tom Hope, University of California San Francisco, San Francisco, CA
Josh Mailman, NorCal CarciNET, San Francisco, CA
Sukhmani Padda, MD, Stanford University Medical Center, Stanford CA
Elcin Zan, MD, New York University Grossman School of Medicine, New York, NY
Videos from the 2018 Bay Area NET Patient Conference

Videos from the 2018 Bay Area NET Patient Conference - View them all here.

Keynote: Dr. Steve Pantilat

Video

LiveStream 2016 Bay Area Conference

Personal Medical Insurance

Understanding PRRT Videos

Videos from the 2018 Bay Area NET Patient Conference