Past Meetings

It was a good first attempt, but alias did not work as planned. There audio did not record correctly.  We would like to thank Dr. Liu, Dr. O'Dorisio and Dr. Baum for participating and Bill Claxton for stepping in to moderate.

The powerpoint from the session is available here.

Here is a breakdown of those that answered the survey.



Where are you located

US 75 93%
Canada 2 2%
Europe 2 2%
Asia 1 1%
Other 1 1%

Are you a ...

Patient 74 87%
Caregiver 8 9%
Medical Professional 1 1%
Other 2 2%

About you...

How many years since your diagnosis

Under a year 14 19%
2-5 years 28 38%
over 5 years 32 43%

Where is/was your primary

Pancreas 11 15%
Lung 12 16%
Small Intestine  29 39%
Colon 2 3%
Rectum 1 1%
Stomach 3 4%
Other 16 22%

The farthest you have traveled for a treatment or evaluation

Less than 60 miles (100km) 24 33%
60-120 miles (100-200km) 4 5%
Over 120 miles (200km) 45 62%

Are you or have you seen a NET Specialist

Yes 55 76%
No 14 19%
Not Sure 3 4%

Support Group / Education

Do you / have you attend a support group

Yes 48 60%
No 32 40%

Have you attend a NET Patient / Caregiver Conference

Yes 44 54%
No 37 46%


On August 3rd, 2013, Dr. Eugene Woltering spoke to us via skype video conference.  His talk "What's new in gene regulation of growing tumors?", brought us up to date on some of the latest new advances and thinking at the Kenner Clinic.

Josh Mailman, President of NorCal CarciNET Support group, will gave an overview of PRRT and GA68 based on information gathered from recent conference on the topics. Josh also gave a plenary talk at the Society of Nuclear Medicine and Molecular Imaging annual conference in Vancouver. Both presentations are available below.

NorCal CarciNET Presentation


SNMMI Plenary



2013 Neuroendocrine Tumor Patient Conference

Hosted by: NorCal CarciNET & UCSF Helen Diller Family Comprehensive Cancer Center

Sunday, January 27, 2013 - 9:00 am to 3:00 pm

Please join us for a day of discussion on the latest developments in neuroendocrine tumor (NET) research and treatment. Topics will range from discovery and diagnosis through treatment and living with cancer and feature experts from UCSF, Stanford, Vanderbilt, and Cedars Sinai. Open to both patients and caregivers.

This event has passed - no registration is available.

To view the presentations from the conference please click here to go to our file section.

December 1, 2012 - Donald I. Abrams, MD - Director, Integrative Oncology Research Program, Osher Center

Donald is a Professor of Clinical Medicine at the University of California San Francisco and Chief of Hematology / Oncology at San Francisco General Hospital. He provides Integrative Oncology consultations at the UCSF Osher Center for Integrative Medicine. He is co-chair of the UCSF Helen Diller Family Comprehensive Cancer Center's developing program in Supportive Care. Please click here to download a PDF of Dr. Abrams presentation.

Full Talk

Q and A Session: