Past Meetings

The Caring for Carcinoid Foundation and Stanford University Cancer Center present

The 4th Annual Neuroendocrine Tumor Patient Educational Conference

Sponsored by Stanford University and the Caring for Carcinoid Foundation in collaboration with
the University of California San Francisco and the Northern California CarciNET Community

Presentations and Videos are available here.

We are pleased to bring together our extensive communities of patients, caregivers, medical professionals, and supporters for our 2015 educational conference. The entire Stanford leadership team who will be conducting the Caring for Carcinoid Foundation’s 2015 immunotherapy clinical trial will be in attendance! Learn about the latest developments in clinical care for patients with neuroendocrine cancer from experts at Stanford and UCSF. Attendees will be able to network with distinguished medical professionals and fellow patients. Sessions will cover advances in diagnosis and treatment, the latest in research, and coping with the stresses of living with cancer.

To learn more about the Caring for Carcinoid Foundation, visit or call 617-948-2514.

Please contact This email address is being protected from spambots. You need JavaScript enabled to view it. with questions. Click here to view our flier


At our December 6th, 2014 meeting, Ron Hollander, Executive Director of Caring for Carcinoid Foundation (CFCF) shared with us exciting information about the Immunotherapy research they are funding for NETs at Stanford and University of Pennsylvania.

Ron shared with us the following video on the work that has been done on immunotherapy with other diseases by Dr. June a member of the UPenn team.

Fire With Fire | Ross Kauffman from Focus Forward Films on Vimeo.


Press play to listen to Ron's presentation to our group.  {mp3}Josh_CFCF_Audio_20141206{/mp3} 

To learn more about immunotherapy and NETs please click here.

In addition we also watched a presentation on Stress and Cancer that was preseted at the Society for Integrative Oncology's 2014 Conference by Dr. Sonia Lupien of the Centere For Studies on Human Stress

ucsf hdfccc logo 4color

3rd Annual NorCal CarciNet Community / UCSF Patient Education Conference

January 19th Kructh Theater - Clark/Kerr Campus, UC Berkeley

Presentation are available by clicking here.
Videos are available below or by clicking on the topic name.  Q&A is audio only.


Registration Open


Josh Mailman (NorCal CarciNet)

Morning Session

(Moderator: Bergsland)


Overview of NETs and Diagnosis and Treatment options from Endocrinologist Perspective.

Thomas O’Dorisio (University of Iowa)

Neuroendocrine Tumors of Unknown Primary: Is the Primary Site Really Not Known?

Eric Nakakura (UCSF)



THERANOSTICS – clinical aimshots in surgical war against neuroendocrine cancer

Dieter Hörsch (Zentralklinlk Bad Berka)


Ga68 / PRRT Bay Area Update

Andrei Iagaru (Stanford) /  Thomas Hope (UCSF)

Morning Q&A (click for audio)

Morning Speakers + Dr. Bergsland and Dr. Van Brocklin


Afternoon Session:

(Moderator: Mailman )

Integrative Oncology:  Improving Quality of Life and Clinical Outcomes

Lorenzo Cohen (MD Anderson)


Understanding Clinical Trials / Current Trials

Emily Bergsland (UCSF)


Living with a chronic illness: strategies for maximizing the caregiver and patient well being

Dianne Shumay (UCSF)
Erik Peper (SFSU)



Videos below were made possible by an educational grant from the Society of Nuclear Medicine and Molecular Imaging.

All videos will be released by Feb 6th, 2014.


On Saturday, December 7th, 2013, NorCal CarciNet Community welcomed Stephanie A. Fajuri, Staff Attorney from the Cancer Legal Resource Center (CLRC) joining us to help us better understand our choice with the Affordable Care Act and Covered California.  We have recorded the presentation and CLRC has made the presentation available to us.  Click here to download the presentation.  The handouts for the presentation are available by clicking here. Additional information / presentations from the CLRC are available by clicking here.

Please understand that the information was current as of December 7th, 2013 but that changes can and do happen so please make sure to confirm any information you hear here. If you have additional questions or issues please click here for CRLC intake form or call 866-843-2572



On August 3rd, 2013, Dr. Eugene Woltering spoke to us via skype video conference.  His talk "What's new in gene regulation of growing tumors?", brought us up to date on some of the latest new advances and thinking at the Kenner Clinic.