It was a good first attempt, but alias did not work as planned. There audio did not record correctly. We would like to thank Dr. Liu, Dr. O'Dorisio and Dr. Baum for participating and Bill Claxton for stepping in to moderate.
The powerpoint from the session is available here.
Here is a breakdown of those that answered the survey.
Summary
Where are you located
US |
75 |
93% |
Canada |
2 |
2% |
Europe |
2 |
2% |
Asia |
1 |
1% |
Other |
1 |
1% |
Are you a ...
Patient |
74 |
87% |
Caregiver |
8 |
9% |
Medical Professional |
1 |
1% |
Other |
2 |
2% |
About you...
How many years since your diagnosis
Under a year |
14 |
19% |
2-5 years |
28 |
38% |
over 5 years |
32 |
43% |
Where is/was your primary
Pancreas |
11 |
15% |
Lung |
12 |
16% |
Small Intestine |
29 |
39% |
Colon |
2 |
3% |
Rectum |
1 |
1% |
Stomach |
3 |
4% |
Other |
16 |
22% |
The farthest you have traveled for a treatment or evaluation
Less than 60 miles (100km) |
24 |
33% |
60-120 miles (100-200km) |
4 |
5% |
Over 120 miles (200km) |
45 |
62% |
Are you or have you seen a NET Specialist
Yes |
55 |
76% |
No |
14 |
19% |
Not Sure |
3 |
4% |
Support Group / Education
Do you / have you attend a support group
Have you attend a NET Patient / Caregiver Conference