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It was a good first attempt, but alias did not work as planned. There audio did not record correctly.  We would like to thank Dr. Liu, Dr. O'Dorisio and Dr. Baum for participating and Bill Claxton for stepping in to moderate.

The powerpoint from the session is available here.

Here is a breakdown of those that answered the survey.

 

Summary

Where are you located

US 75 93%
Canada 2 2%
Europe 2 2%
Asia 1 1%
Other 1 1%

Are you a ...

Patient 74 87%
Caregiver 8 9%
Medical Professional 1 1%
Other 2 2%

About you...

How many years since your diagnosis

Under a year 14 19%
2-5 years 28 38%
over 5 years 32 43%

Where is/was your primary

Pancreas 11 15%
Lung 12 16%
Small Intestine  29 39%
Colon 2 3%
Rectum 1 1%
Stomach 3 4%
Other 16 22%

The farthest you have traveled for a treatment or evaluation

Less than 60 miles (100km) 24 33%
60-120 miles (100-200km) 4 5%
Over 120 miles (200km) 45 62%

Are you or have you seen a NET Specialist

Yes 55 76%
No 14 19%
Not Sure 3 4%

Support Group / Education

Do you / have you attend a support group

Yes 48 60%
No 32 40%

Have you attend a NET Patient / Caregiver Conference

Yes 44 54%
No 37 46%