August 2nd, 2014 - NorCal CarciNet Community Bi-monthly Meeting

On Saturday, August 2nd, 2014 from 1-4pm we will have our regular meeting at the Cancer Support Community (CSC) in Walnut Creek.

Dr. Edda Gomez-Panzani, Ipsen's Vice President, Clinical Sciences - Neuroendocrinology will be joining us.  She will talk to us about the Clarinet clinical trial that was published last year, and give an overview talk about cancer and the challenges of diagnosing NETs. See the In the News section below for more Ipsen related news.  This presentation will not be recorded.

We look forward to seeing you. CSC is located at 3276 Mc Nutt Avenue, Walnut Creek, CA.  For more information visit our meeting page online.


Jeannette Shaffner Education Travel Grant

 To honor the founder of NorCal CarciNet Support Group, our board has approved two patient travel grants of up to $1,000. Preference will be given to patients who have not previously attended a national conference.  The travel grants are for the upcoming national NETs conference in Charlotte, NC on September 18-20.  For more details or to apply please visit our grant page. The deadline to apply is this Sunday, August 3rd.  To learn more about the conference including the list of speakers click here.

In addition to providing patient travel grants, NorCal CarciNet Community's board has approved education grants to UCSF, Stanford and Kaiser to send a member of their medical staff to the NANETs (North American Neuroendocrine Tumor Society) meeting in Nashville later this year. These grants are for medical professionals who have not previously attended a NANETs meeting. Our hope is to broaden the knowledge of the medical teams that serve our community.


In the News:

Drs. Nakakura and Bergsland from UCSF published a perspective in this month's JAMA Surgery on "Neuroendocrine Tumors of Unknown Primary - Is the Primary Site Really Not Known?" Click here  article.

UCSF has received approval for their Ga68 Pet/CT study and are now accepting patients.  The first patient was scanned this week. Click here to read more.

Ipsen submitted a marketing authorization application in the US and Europe for Somatuline┬« (lanreotide) in the treatment of gastroenteropancreatic neuroendocrine tumors (GEP-NETs).  Click here to download the press release. Lanreotide was also featured in the New England Journal of Medicine's July edition.

Lexicon has added an additional trial for those that did not meet the inclusion criteria of the Telestar trial.  Telecast trial is now open at Stanford. Both trials are for those that have carcinoid symptoms who are refractory to, or could not tolerate somatostatin analog therapy. Lexicon includes travel support to those who do not live near a participating center but who otherwise qualify for the study.

Fundraiser this Sunday for Caring For Carcinoid Foundation - The Pignati Family who are members of our NorCal CarciNet Community, are hosting a fundraiser on August 3, 2014 to raise money for the Caring for Carcinoid Foundation (CFCF).  CFCF is one of the largest provider of research funding for NETs. The Bike/Run/Walk will be held at Palo Alto's Gunn High School.  For more information please check their website

Videos from CFCF's Los Angeles conference in June are now available on YouTube. Speakers include Martin Allen Auerbach of UCLA, Pamela Kunz of Standford, Greta Macaire of UCSF Helen Diller Family Comprehensive Cancer Center, and Nicholas Nissen, Deane Wolcott, and Edward Wolin, all from Cedars-Sinai.


Future Meetings:

Our October meeting will be on Sunday, October 5th, 2014, from 1-4.  Please note that the meeting is being held on a Sunday as the day before (Saturday) is Yom Kippur.


Thank you for your support of NorCal CarciNET Community. Your contributions have enabled us to continue to bring excellent speakers to our meetings and conferences as well as provide educational opportunities for patients and medical professionals. Contributions to NorCal CarciNET Community are tax-deductible.