In the News:

The Carcinoid Cancer Foundation in White Plains, New York has awarded a grant of more than $65,000.00 to Stanford University in California to expand access to its Gallium-68 (Ga-68) DOTA-TATE PET/CT program for carcinoid and neuroendocrine tumor (NET) patients with somatostatin receptor positive tumors. Click here to read more.

UCSF has received approval for their Ga68 Pet/CT study and are now accepting patients. Click here to read more.

Ipsen submits marketing authorization applications in the US and Europe for Somatuline® (lanreotide) in the treatment of gastroenteropancreatic neuroendocrine tumors (GEP-NETs).  Click here to download the press release.

Lexicon has added an additional trial for those that did not meet the inclusion criteria of the Telestar trial.  Telecast trial is now open at Stanford. Both trials are for those that have carcinoid symptoms who are refractory to, or could not tolerate somatostatin analog therapy. Lexicon includes travel support to those who do not live near a participating center but who otherwise qualify for the study.

August 2nd, 2014 - NorCal CarciNet Community Bi-monthly Meeting


On Saturday, August 2nd, 2014 from 1-4pm we will have our regular meeting at the Cancer Support Community (CSC) in Walnut Creek.

Dr. Edda Gomez-Panzani, Ipsen's Vice President, Clinical Sciences - Neuroendocrinology will be joining us.  She will talk to us about the Clarinet clinical trial that was published last year, and give an overview talk about cancer. 

We look forward to seeing you. CSC is located at 3276 Mc Nutt Avenue, Walnut Creek, CA.  For more information visit our meeting page online.

Jeannette Shaffner Eduction Travel Grant

To honor the founder of NorCal CarciNet Support Group, our board has approved two patient travel grants of up to $1,000. Preference will be given to patients who have not previously attended a national conference.  The travel grants are for the upcoming national NETs conference in Charlotte, NC on September 18-20.  For more details or to apply please visit our grant page.

In addition to providing patient travel grants, NorCal CarciNet Community's board has approved education grants to UCSF, Stanford and Kaiser to send a member of their medical staff to the NANETs (North American Neuroendocrine Tumor Society) meeting in Nashville later this year. These grants are for medical professionals who have not previously attended a NANETs meeting. Our hope is to broaden the knowledge of the medical teams that serve our community. All entries must be received by July 9th, 2014.


Future Meetings:


Our October meeting will be on Sunday, October 5th, 2014, from 1-4, as the day before is Yom Kippur.

Thank you for your support of NorCal CarciNET Community. Your contributions have enabled us to continue to bring excellent speakers to our meetings and conferences as well as provide educational opportunities for patients and medical professionals. Contributions to NorCal CarciNET Community are tax-deductible.


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