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There are many resource / websites for those who are newly diagnosed and their families and friends. Here is a short list of resources we find helpful.

Books:

You Have Cancer - Moving From Fear to Hope: First Steps for the Overwhelmed - L. Zien
Practile advice on how to approach your diagnosis and what to do next.

AntiCaner - A New Way of Life - D. Servan-Schreiber
The revolutionary, New York Times bestselling guide to the powerful lifestyle changes that fight and prevent cancer—an integrative approach based on the latest scientific research

AntiCancer Living - Transform Your Life and Health with the Mix of Six - L. Cohen
Follow-up to Dr. Schiber's book

Booklist for Children and Families - Currated by Yale Cancer Center

When a Parent Has Cancer - W. Harpham

Support Community:

Most hospitals have Cancer Resource Centers that provide support. You may wish to also look at the programs host by the Cancer Support Community located in Walnut Creek.

Video:

Living with Cancer - Steve Pantilat
Outstanding video on living a meaningful life with cancer and the inculsion of palative care at the time of daignosis

Selected Articles by Josh Mailman:

Living with a Rare Cancer - My Dr. Sucess World
A Patients’ Perspective on Integrative Oncology: Getting Past the “War,” Living With and Beyond Cancer

Agenda - Subject to Change You. To Switch to HD please click on the playback screen and change resolution (next to live button.

Download the Program Here

Click here if you would like to view full screen or are having any issues with playback.

Robertson Auditorium - 2nd Level UCSF Mission Bay Conference Center
8:30 NETS Overview 
- Pre Conference session for the newly diagnosed
Bergsland
8:55 Break 
9:05 Opening Remarks
Alan Ashworth, PhD, FRS
President, UCSF Helen Diller Family Comprehensive Cancer Center
  Morning Session - Moderator: Bergsland 
9:25 2015: Year in Review
(including results of 3 phase III clinical trials in NETs and ongoing trials)   
Kunz
10:00 Break 
10:15 Molecular Imaging and Radiotherapeutics 
  Advances in Imaging for NETS Hope
  Peptide Receptor Radionuclide Therapy (PRRT):
NETTER-1 results and 15 years of institutional experience
Baum
  PRRT: Next Steps and Ongoing Trials  Mittra
11:05 Liver Directed Therapy for NETS Sze
11:30 Biomarkers in a Nutshell Liu
11:45 Morning Q&A All
12:15 Lunch 
1:00 The Warner Advocacy Award Salamakha
Warner Advocacy
Award Committee
  Afternoon Session - Moderator: Nakakura 
1:15 Tumor Board: Integrating therapeutic options:
Is there an optimal sequence for PanNET or Carcinoid
 All
2:00 Assembling and Coordinating With Your Health Care Team
(e.g. local providers, NET specialists and multidisciplinary teams)

Mailman
Liu
Kwong
Cylke

2:30 Immunotherapy 101:
Successes, limitations, and prospects for the future
Fong
3:15 Break 
3:30 Funding NET Research:
What does it take to bring a drug from the bench to the bedside? 
Hollander
Nakakura
3:50 Living With NETS:
Optimizing coping skills for patients and their caregivers
Shumay
4:30 Wrap Up Bergsland
Mailman

On April 7th, 2012, JoEllen DeNicola APP, the Nutrition Director Ceres Community Project spoke to us on Nutrition and Cancer. Please click here to download the presentation from her talk.

ADDRESS

Mission Bay Conference Center at UCSF
1675 Owens Street
San Francisco, CA 94143-3008

PARKING & MAP

Pakring is Free for the conference - UCSF will provide parking vouchers at the registration table.

Screenshot 2016 01 15 at 9.19.40 AM

 

DRIVING Directions

From the North Bay/Golden Gate Bridge

After crossing the Golden Gate Bridge, drive east on 101 (Doyle Drive) towards downtown.
Exit at Marina Boulevard and follow Marina Boulevard past Fort Mason.
Turn left onto Bay Street.
Turn right onto the Embarcadero.
After passing under the Bay Bridge, the Embarcadero will become King Street.
Turn left onto 3rd Street just past AT&T Baseball Park.
Cross 3rd street (Lefty O'Doul Bridge) and continue south on 3rd Street.
Turn right on 16th Street.
Turn right onto Owens Street.
Turn right into the parking garage.

From the South Bay/San Francisco Airport: 101 North

Exit onto Vermont Street.
Turn right onto 16th Street and continue for 0.6 miles.
Cross the railroad tracks that are under the I-280 overpass.
Turn left onto Owens Street.
Turn right into the parking garage.

From the South Bay/San Francisco Airport: 280 North

Exit at Mariposa Street and turn left.
Turn right on Mississippi Street and go two blocks.
Turn right on 16th Street.
Turn left onto Owens Street.
Turn right into the parking garage.

From the East Bay/Bay Bridge

After crossing the Bay Bridge, exit at Fifth Street and turn left onto Harrison.
Go one block, then turn left on 6th Street.
Turn right on Brannan.
Turn left on 7th and go straight until 16th Street.
Turn left on 16th Street.
Turn left onto Owens Street.
Turn right into the parking garage.

PUBLIC TRANSIT - MUNI

T-Third Metro Line picks up at the 4th and King Street Caltrain Station and the Embarcadero BART station. Stop: UCSF Mission Bay Station on 3rd Street opposite the campus.

 

Neuroendocrine tumors (NETS) are rare cancers found in only about 2% of all individuals diagnosed with cancer each year. There are many varieties, with carcinoid being most common. Other NETS include islet cell, VIPoma, gastroma and insuloma.


Carcinoid and other NETS often release certain hormone-like substances into the bloodstream. Most cancers cause symptoms only in the organs they start in or spread to but carcinoid can cause symptoms throughout the body. Symptoms include diarrhea, flushing, wheezing, fast heartbeat and weight loss, in addition to the pain often experienced in the original location of the tumor.


NETS may appear almost anywhere but they are most often found in the abdominal region, pancreas and lungs. Because symptoms resemble those of other diseases, such as irritable bowel syndrome and Crohn's disease, they are often misdiagnosed for years. Blood tests such as serum chromogranin A or urinary 5HIAA can accurately diagnose these tumors.


Carcinoid and other NETS are typically slow-growing. There is often a false belief in the medical community that some of these NETS are benign. They are not! They can and will metastasize and they can be deadly. But advances in treatment have improved the length of survival in carcinoids and other NETS.