2016 has been a truly groundbreaking year for NorCal CarciNET Community and the NET Community as a whole.

We started the year in January with nearly 350 members of our  community coming together for our annual conference - our largest yet. We were also joined by over 500 people on a live stream. During the conference, Josh Mailman, NorCal CarciNET's president, was honored with the Warner Advocacy Award for his work in the NET Community. We look forward to seeing everyone again on February 4, 2017 at our next annual conference which will be hosted by Stanford. Registration will be opening. 

NCCN at ORFIn March, 90 members of our community joined together to raise NET awareness at the Oakland running festival. In our 4th year at the festival we raised over $5,000 for our community programs. We hope to be over 100 strong when we take part in our 5th festival on April 2, 2017.
To join us please click here.

In 2016, we expanded our community meetings thanks to a collaboration with UCSF. Our community now has an an opportunity to meet monthly, meeting on even month at the Cancer Support community in Walnut Creek and odd months at UCSF Mission bay. To see our current meeting schedule please check our website’s meeting page. Funding for our meetings is provided by our community contributions.


In our continuing goal to educate both patients and the medical community, NorCal CarciNET awarded 4 education grants (2 for patients and 2 for doctors.) Our patient grantees, along with members of the NorCal CarciNET board, attended the 3 day Neuroendocrine Awareness Network Conference in New Orleans.  Our doctor grantees attended the North American Neuroendocrine Tumor Society in Jackson Hole at the end of September. Dr. Hope from UCSF, one of our grantees, has presented to our community several times in 2016, and Dr. Padda from Stanford will be presenting her work on in pulmonary disease in 2017.

Josh maintained an active advocacy schedule on the community's behalf, travelling locally, nationally and internationally. He was honored to give Radiology Grand Rounds at Stanford this fall while continuing his work with national and international organizations that has taken him around the world speaking to medical communities about issues important to our patient community. His travels have taken him to Johannesburg and Cochin, India, speaking on living with a rare disease, to Barcelona speaking on dosimetry to Melbourne speaking on the needs of randomized control trials in nuclear medicine.

Our NorCal CarciNET community once again hosted a patient education day in nuclear medicine last June at the Society of Nuclear Medicine and Molecular Imaging's annual meeting in San Diego. We were grateful to be joined by our colleagues in San Diego and Los Angeles as we had nearly 75 patients learning from a international panel of NET experts.

It would be hard to close out the year without highlighting our ongoing collaboration with NETRF. In November, Josh was elected to the board of Neuroendocrine Tumor Research Foundation (NETRF.org) in recognition of the work he has done in the NET Community and his collaboration with NETRF in support of its efforts in NET education and NET research funding.


Strength in Community 

By the Numbers 2016
8 Community meetings held (2017 we will have 12) 
325 Patients and caregivers attended our Community meetings
5 Private discussions groups hosted for those who attend meetings
7,500 Messages processed by our discussion group server
350 Participants in this year's Bay Area Conference
525 Watched our Bay Area Conference Live 
90 Participants at the Oakland Running Festival
$6,000 Amount raised by our Oakland Running Festival participants for NorCal CarciNETS
5,000 Unique visitors to our website (up 20%) 
6,000 Files downloaded from our file section
1,500 People worldwide have joined our mailing list
Terabyte of videos hosted by NorCal CarciNET
150,000 Number of videos loaded from our video server
6,000 Videos watched from our video server
70 Number of countries from where videos were watched from 
105 Contributors who made this all possible

NorCal CarciNET Community is a 501(c)(3) (Tax-Id 45-2968919)

Contribution made to our group are tax deductible.