Join us on our Speaking Up Tour
Building better conversations with our Doctors

In 2017 NorCal CarciNET worked with Lexicon Pharmasectials to host a pannel on talking with your physcians, we called it "Speaking Up...". In May 2017, Josh Mailman, NorCal CarciNET's president wrote on article in Cure Magazine "Learning to Speak Up With Cancer - What stands in the way of patient-physician communications and how can we get around these barriers? What stands in the way of patient-physician communications and how can we get around these barriers?"

Starting in the fall of 2018, NorCal CarciNET is taking the conversation on the road. We hope to "Speak UP" with at least 5 more groups in the coming months. We hope to see you on tour.

Videos from the 2018 Bay Area NET Patient Conference - View them all here.

Keynote: Dr. Steve Pantilat

When we are live we try to post here - 

Our content can be found at or at

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 Open Enrollement - Understanding your ACA Options. November 30, 2017 1-2p Pacific Time

This webinar is hosted by NorCal CarciNET Community to help NET Patients around the country better understand open enrollment for the ACA. 

CLRCWe are pleased to have Stephanie Fajuri from the Cancer Legal Resource Center (CLRC) joining us on the webinar. Stephaine is the Program Director of the Disability Rights Legal Center’s Cancer Legal Resource Center (CLRC) in Los Angeles, California. As CLRC Supervising Attorney, Ms. Fajuri provides legal services to people with cancer related legal issues, and has presented nearly 100 educational trainings on behalf of the CLRC, primarily focusing on topics such as health care reform, employment rights, access to health care and government benefits, and advance planning. Furthermore, she has overseen the counseling of thousands of cancer patients, caregivers, and health care professionals on the CLRC’s national telephone assistance line. 

 You can download the slides by clicking here.



Guidelines for NorCal CarciNET Community Meetings

We recognize that our meetings can be very large with time constraints and that its purpose is to be educational and emotionally supportive, as well as, social.  We care about each one of you and hope that this group will meet your needs while functioning for the overall benefit of the group.

  1. SPEAKER PRESENTATIONS:  We are asking each person to limit his/her questions or comments during the presentation.  Most of our presenters have been very generous with their time by graciously allowing for Q & A at the end of their talk.  Please have a notebook, paper, and pen available to jot down your questions for later discussion.

  2. CONFIDENTIALITY:  Although we cannot enforce confidentiality, we trust the integrity of each participant to honor it.  Personal information remains within the confines of the meeting.  However, it may be at the discretion of the board or facilitator to review issues amongst their peers in order to gain insight that benefits the group as a whole.

  3. TIME:  We recognize that many participants come great distances to our group.  Because there is so much to accomplish in our meetings, please try to arrive on time (noon at UCSF, 1pm at Cancer Support Community), so that we may begin as soon as possible.  For the same reason, we would like to end our meetings at our stated time  (2pm at UCSF and 4pm at Cancer Support Community)  However, should you need more emotional support or personal time than what is available , several board members & the facilitator will remain onsite to be of help to you.

  4. RESPECT:  We respect that you may feel very vulnerable addressing personal issues & feelings in the group—especially if you are new or are in crisis.  Tears, fears, frustration, and anger are all part of this illness and although we share a common disease, each person deals with it individually.  Please be tolerant of other’s ways of needing more time and our support than you may need.  Please be respectful of each and every person in the group - we are all in this together.

Ver 1.0 - May 25, 2017


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